Wednesday, 1 November 2017
Information about the abnormal levels of potassium that patients have with (HypoKpp)
I give you some information about the abnormal levels of potassium that patients have with (HypoKpp)
The information I am putting is obtained from many patients who have (HypoKpp) from around the world who are having the same problem whit levels of potassium in the blood.
When we get the blood to know the level of potassium and potassium comes out with normal levels like 4.0 4.5, but we have paralysis attacks, with potassium levels that are normal for doctors, and that confuses the doctors and the people who are around us.
We are aware that not all patients with (HypoKpp) respond in the same way to treatments that are given by doctors and that sometimes medicines do not work for everyone, and that there are cases that patients with (HypoKpp) Medicines are doing well,
In patients with periodic paralysis the potassium level does not need to drop outside the normal range for an attack to be triggered – Patients whit ( HypoKpp ) if the potassium is normally level around 4 then any change below that could cause an attack.
3.5 is at the low end of normal in all patients. What is important to note is that in the type of periodic paralysis the potassium shifts out of the blood, this is the lower level, and then as the attack starts to improve the levels will increase.
The doctor’s are looking at the available potassium in your bloodstream. Periodic Paralysis happens at the cellular level - you can have lots of potassium in the blood but if the ion channels aren’t working correctly, the muscles will still be weak. That’s a big difference in doctor’s thinking ,
The doctors assume that since the blood potassium isn’t low, Periodic Paralysis can’t be the answer
Like ( Your gas tank can be full but if your fuel pump isn’t working, your vehicle Still isn’t going to start. )
Patients whit ( Hypokpp ) needs potassium number to be around 4.5*.
Patients whit Potassium levels around 3.0- 3.5* is in full paralysis.